Wednesday, July 28, 2010

Close but not home ---YET!

Hi everyone!

I just wanted to send out an email and update you on Easton's situation. 
Last week he had surgery on Friday-- that went well.  He came through that like a trouper.
We were only able to see him for a short while on Friday after surgery-- they wanted him to remain as still and quiet as possible. Sleep was best for him at that point and he received lots of pain medicine.  This was major surgery for the little guy.
He was put on a ventilator to help him breathe.  The pain medicine suppresses his breathing-- the ventilator is just for support, in case he forgets to breathe. By Sunday he was breathing on his own and so that was removed  Sunday afternoon.  Ric and I visited with him Friday, Saturday , and Sunday and were able to see marked improvement.

He's been gradually receiving pedialite to drink and yesterday he was back on Mother's Milk! 
He is almost to full feeds again -- in less than a week.  He is stooling out of his stoma already and we received word today from the Dr's that he may come home as soon as Friday --- or Saturday. 
We are so excited!  Wyntr and Kevin have been waiting for this and are super excited. 

Praise the LORD!

On another note-- we were really blessed to get to sit and talk with the surgeon who performed Easton's surgery.  He is a believer and he shared his faith with us through his testimony and he shared the word of God so freely.  I was encouraged and it is evident that Kevin and Wyntr were encouraged as well. 

This whole time that Easton has been alive and in the hospital I have wondered what the plans of the LORD are for our family-- and how he is going to use Easton's life to be glorified.  I keep looking with faith and I see God's hand at work.  Nothing happens so that God can remain anonymous-- He wants to be glorified.   I am grateful to Dr Hermann for sharing his faith.  God used him in a profound way to speak truth into my own heart.

Dr Hermann shared this verse with us

If any of you lacks wisdom, he should ask God, who gives generously to all without finding fault, and it will be given to him--James 1:5
I keep thinking of this verse ever since meeting Easton's surgeon last friday--- and then  Pastor Jack quoted on Sunday-

Thou art worthy O LORD,to receive glory, honor and power: for thou has created all things and for thy pleasure they are created.  Revelation 4:11
God Bless you
and Thanks for reading!

 
Pat

Monday, July 19, 2010

Easton and Another baby?


Just dropping a line and a quick photo--
This picture is Easton getting his first taste of the Good stuff-- NOT pedialite - he didn't get much but what he gets is good to him. This was taken almost 3 weeks ago.  I no longer have the internet at home so I post when and where I can.  So if it seems slow for me to get back --that is why.
Hoping that will all change soon.
 
With Easton
Everything is working well. He is almost to FULL Feeds which for him would be 3 oz.  He is at about 2 oz. now.
His bowel is awake and working well. He is quite the little trooper and becoming quite the big boy- He is up to 8 lbs and 8 oz already!

He is doing so well that it is planned for him to have his second surgery by the end of this week.

**edited to say--- The surgery is scheduled for Friday the 23rd of July 2010 --1 pm
They will be reconnecting the lower bowel in order for it begin to grow and dialate so that he can evacuate normally.

Once he has his surgery then we'll be back at square one
*Bowel waking up
*Tolerating Feeds
*Metabolizing his Nutrition (digesting it and not just pushing it out)
*Weight maintenance (no loss)

On another note:
Our Son Taylor and his wife Kendra are expecting in August. As most of you know they lost a baby at 21 weeks last year--

On Sunday, the 18th,  Kendra was having contractions and went to the Labor and Delivery -- She isn't due until August 22, but delivery is probably going to occur between now and the next 2 weeks.  She is showing all the signs of preterm labor.
She received fluids and ordered strict bedrest for the duration of the pregnancy.  We are praying for her to make it as far as possible -- 40 weeks is best, but after 36 is promising- though premature.

Please remember these two families in prayer -- it is a test of Faith, I'm praying that God be Glorified in all our lives-- through the testimonies and lives of these babies.

I'll leave you with this verse-- I've posted it before, but it is a favorite and something we need to be reminded of daily...The Knowledge of our God is too wonderful and high that we can not attain it.

LORD, You have searched me and known me.
  You know my sitting down and my rising up;
         You understand my thought afar off.
 You comprehend my path and my lying down,
         And are acquainted with all my ways.
  For there is not a word on my tongue,
         But behold, O LORD, You know it altogether.
  You have hedged me behind and before,
         And laid Your hand upon me.
  Such knowledge is too wonderful for me;
         It is high, I cannot attain it.  
Psalm 139:1-6 



God Bless you and Thanks for reading.  
Pat